Living with PH1, together

Incorporating primary hyperoxaluria type 1 (PH1) management into your life

About PH1
mangement-con home-con

Welcome to Living with PH1, a site dedicated to educating the primary hyperoxaluria type 1 (PH1) community.

PH1 can present at any time and at any age. When it does, we have resources for you.

section mangement-hero
Kidney Stone
Oxalate in Kidneys Illustration
Progressive Kidney Damage Illustration

The most common symptom of PH1 is kidney stones, which form due to too much oxalate being made in the liver.

Too much oxalate can be a cause for concern. Oxalate overproduction can damage the kidneys and can affect your body’s ability to filter waste from the blood and to create urine.

As oxalate is constantly overproduced, it may continuously be doing damage, even when you don’t realise it.

About PH1
container kideny-common block-left pt-215 mb-95 mob-mb-0 pt-mob-35 pb-mob-65
grey-bg grey-fullwidth kideny-section
kideny-common
MAN
AGE
MENT

Management matters

PH1 is a progressive disease that may get worse over time. Staying on top of your PH1 management cannot stop the liver from overproducing oxalate. Your healthcare team may recommend approaches to help you better manage the disease.

Managing PH1
animated-section management mob-mb-65
section grey-bg management-bottle

I draw strength from the community

when it comes to knowing that there are others

out there dealing with the same thing.

Laura W.

Mother of a child with PH1

Living with PH1
container caption-section
light-blue section
EXPAND
YOUR
CIRCLE

Expand your circle of support

Explore resources and materials designed specifically for the PH1 community.

EXPLORE PH1 RESOURCES
rev animated-section management mob-mb-65
section grey-bg expand-section
THOSE
WHO
CARE

For those who care

If you are caring for someone living with PH1, we care about supporting you. See the support that can help.

Parents & CAREGIVERS

 

PH1-CAN-00006 | April 2022

animated-section management mob-mb-65
section section-tv
animated-section-reference home-reference mob-mb-65
section hide-all